I Have the Most Extreme Case of Tourette’s | Living Differently


My tic started out
with the hand movements
and little eye movements,
you, you can see.
First it was, kind of, nothing,
but then they started progressing.
That’s, kind of, the first thing
that’s on my mind every day.
Cos it’s the first thing I…
..sit here and do in the morning,
when I wake up.
Just become, like, the main
part of my life, I guess.
Tourette’s presents
a lot of challenges,
but I try to overcome
them as they come along.
Tourette’s is hard.
It takes a toll on you and
there’s a lot of negative things
that are associated with Tourette’s.
One thing that tics make
a lot harder is walking.
My, my knee or leg tic, kind of,
really takes a beating
on my knee, at times.
And it just, like, makes it…makes
walking hard.
I’m a freshman in college.
I go to North Iowa Area Community
College, here in Mason City, Iowa.
I’m hoping to become an engineer.
I’m thinking mechanical.
I’ve been going to school
for about two and half months.
Trevor has severe debilitating
Tourette’s syndrome.
Tourette’s can, can be very mild
or it can be very severe.
Every single doctor we have seen
says that, “He has the worse case
“that we have ever seen.”
I myself have Tourette’s,
I recognised what was happening.
With my case of Tourette’s
it was extremely mild.
As I got into my later teens,
it started to go away.
With Trevor, as he got into his
teens, his started to get worse.
A lot of people steer clear
of me because of my tics.
They see it and I think
it’s not normal.
I will say I have not had
very many friends in my life.
School…
..I was the most bullied.
The bullying, it’s, actually, it’s
evolved over the years, really.
In the beginning, a lot of staring.
And then, when you put him in
school, the bullying and the teasing
started to get a little
more sophisticated.
Hit us pretty hard, because
we realised what the rest
of the world saw.
There’s been times where I’ve got
really frustrated with the tics.
This is very tiring,
because I can’t stop moving.
Cos it’s always, this takes
a big chunk…
..of time and energy just
trying…just having the condition.
I think it’s frustrating to see
people staring at him and you’ll see
people look at him and then,
sort of, talk to their friends
and you know they’re
talking about him.
And I think it’s because people
don’t like what they don’t
understand.
They’re very judgmental,
for sure…and that’s hard to watch.
We’ve developed a look
for when people stare. Yeah.
We never say anything, but we give
them a look. We give them the
death stare, yeah.
As Trevor got older, we realised
he wasn’t going to get better.
I had to make some decisions
around what kind of life Trevor
was going to have. What if
the tics never got better?
He had to live a life like this.
We started making him
cook and clean
and we don’t treat him any
different than any other teenager.
I started playing guitar
at around 15ish.
Cos I realised playing music,
kind of, gave me some relief,
in having the tics,
essentially, stop in a way.
Music, kind of, provided some
relief from the tics. When I…
..when I played, the tics would stop
and, essentially, just go away,
as I was playing.
Which seemed like a miracle
at the time.
When he plays music, when he
gets into a groove, um,
it’s like his brain is
distracted and the tics go away.
It’s a lot of joint pain,
he gets neck and back pain.
We said, “Well, let’s give
some medication a try.”
He had to try a lot of
different medications.
They all had side effects,
nothing was working.
Eventually, we, we knew that
there was nothing left.
So, that’s when he got approved
for deep brain stimulation.
We stopped the medications.
As any parent, I think, when you’re
talking about brain surgery,
it’s pretty terrifying.
I think it’s a little,
I wouldn’t say scary,
but it is interesting having
something put into your brain.
I think the benefits will, I’m
thinking they’re going to greatly
outweigh the risks.
But I guess I won’t really know
until we do it and try it.
I have really just one option left.
Tried to appeal it, we went
through every avenue we could,
with no, uh, with no luck.
I think it’s been frustrating
to watch him go through that.
Yeah, it’s been really difficult,
you know, seeing him go through
all the different medications and
nothing really helping, at all.
It’s hard to come up with
that kind of money and…
..for a surgery.
It’s been really stressful
and tiring trying to…
..get that going.
# The sun shines
# Down on me
# Telling me… #
We have been working towards this
for the last three years.
Hoping that they’re able to reduce
them quite a bit, so I can start
living a normal life.
It’s been rough with my tics
for all these years.
# The sun shines
# Down on me
# Just waiting… #
So, the next steps from today…
..is to wait, wait a week.
Because we want to have everything
get used to the voltage.
From then or there I…
..I can use my remote
to control the device
and slowly up the voltage,
slowly over a period.
Over the weeks, until,
eventually, get to the point
where I think that it’s good.
And then we go from there.
I’ve noticed the tics have
been reduced a little bit.
It gives me a lot of hope.
So, yeah, we can just see.
We got the right spot.

100 comments

  1. I hope he gets the help for his tics. That's horrible. No one should have to live like that . He's gorgeous and talented with amazing hair !!! It sucks that anyone has to go through that . God bless him 🙏

  2. His sister is absolutely correct. People don't like what they don't understand. My son has autism and he doesn't have the " look" of a special needs child , however , his actions are more of a smaller child and his apraxia doesnt allow him to use his words effectively. He reprogrammed his talker too many times so we decided against using it .A lot of people don't try to understand either.

  3. Wow, I love how supportive and kind all these comments are. Trevor, if you're seeing this, all 2,822 of us will be your friends! I hope the bullies at your school are quaking.

  4. Musically talented, mathematically minded, emotionally mature … and his parents and siblings are right there with him trying to support him without coddling. Good people all around.

  5. I have intrusive toughts andi suffer so much i have tics too due to it.
    (Just tics not tourettes).

    I feel him

  6. There is a popular German YouTube channel from a guy with serious ticks. It is fallen "gewitter im Kopf" (thunderstorm in you head). Check it mit even if you don't unterstand German.
    https://www.youtube.com/channel/UCh2Nc3OwjSwuXrUdFNXqFbQ

    The best film for non German speaker might be the one where he is baking Pizza with his friend: https://youtu.be/_HxIDbqIF8c

  7. I think I'd develop tourrettes if I had hair like that flapping about in my face. Yes, as others have said..nice hair, not knocking it. But dam it looks annoying

  8. I think if children were more educated on disabilities and understanding bullying could change I raise my child so see everyone and I mean EVERYONE the same

  9. I know exactly how you feel I suffer with Tourette’s as well… But not quite as bad… There are people who can barely walk though because their tics are so bad. So I’m not sure if you have the worst case… You wouldn’t believe how bad it can get to where people are literally ticking the entire time and doing so many they’re just jerking And slapping them selves nonstop… I’m not trying to say yours isn’t bad or downplaying it at all but it can actually even get worse than this

  10. The chances of the next generation inheriting Tourette’s goes up like 76% each generation. My father had a few mild tics like eye blinking… I have full-blown Tourette’s but it’s not as bad as a lot of peoples… My son has ticks… My sister has ticks really bad and her oldest son has ticks as well… It is very very genetic….Stay strong… There are ways you can learn to control it a little bit… I know exactly what you’re going through though and I know it’s horrible… Keep your head up and blessings

  11. Keep using that music because that will help you a lot… Anything to distract… You are really good too 💜🙏🏻

  12. The medication for Tourette’s is horrible especially Risperdal….I am on Clonopin and that seems to keep it somewhat under control. Very addicting though….Cannabis ( not addicting) helps tremendously. I watched a video… You can look it up here on YouTube… This man had tics so bad he looked like he had Parkinson’s… After smoking one big joint he was completely fine… Cannabis is a healing medicine, not a bad drug like the government has tried to brainwash us into thinking… I am telling you ,if you live in a legal state ,try that. It may not work for everyone…. But I have seen it work miracles with Some and it helps me for sure …I am not recommending this at all but I am also on the methadone clinic( because I am an opiate addict )and for some reason that seems to help my Tourette’s. I think the Clonopin Helps greatly but I’d much rather use cannabis. Unfortunately I don’t live in a legal state… Another reason it needs to be legalized or at least medicinally legalized in every state with dispensaries in every state… Sorry I got way off topic but I haven’t finish this video and I just want to suggest cannabis

  13. I'd be more embarrassed being an idiot, than being friends with him. It can't be easy walking in his shoes. 🎸 on man, and best of everything.

  14. What a wonderful young man if only he would tie his hair back every morning, Please for his sake

  15. Long hair and tourettes don't seem to go well. No disrespect but you'll be brushing it away from your face more than breathing.

  16. I think maybe if he gets his hair cut so it's not in his face, it might help a lot with his head tics. I know it's his medical condition that's causing it but it might just help a little

  17. How does his hair not get on his nerves, he’s pulling it off his face and tucking it behind his ears every other second.

  18. I wanna be friends with this guy… He seems like a nice guy! And he's smart… He looks nice… And his hair is just amazing!

  19. take time to pray!!!!!!!! Ask God please to help you. If you show God Love he will give you peace, so please accept Jesus in your heart and pray hard!!!!

  20. I have a few things I think are ticks. Like I have the uncontrollable need to clear my throat. It's like holding in a sneeze trying not to do it. I must do it a thousand times a day (every 2 seconds according to my dad). I've never mentioned it to my doctor. Would he be able to help me stop if I did?

  21. Some tourretes may be cured thru the brain surgery, they put something like small and tiny pipe to their head…join "we can" platform or something to earn donations…..you guys can do it!!! Very good family who supports each other

  22. As early tourette extreme person myself is always hard See people have speciel Those who keep having it it Will never dissapear but it can be better i grow out off it Even always Will have it Hope u can Hold on dude 👍

  23. My Tourettes has got to the point were i dont have energy to even tic anymore and the ocd wit it kills me im in mental and psychical torment every fuckin damn day im so so tired

  24. Why is that the most isolated and unpopular person, is also the loveliest?! Trevor, you are AMAZING and I'm sure everybody on YouTube loves you… Go trevor!!! 💜❤💜❤💜❤💜❤

  25. Bless his heart handsome young man still just go to slayer concert everyone there are moshing I always fit in at a concert and crew what other people think humans can be the on anyone the can really suck I play guitar myself bro🤘🤙👍

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